Showing posts with label special ed. Show all posts
Showing posts with label special ed. Show all posts

Thursday, November 29, 2012

Sisters!

Avery is 6 months old now! Time sure flies when you are having fun and we are having lots of fun. It has been such a different experience for us. It almost seems like Avery is growing twice as fast. We were convinced at her 6 month visit this week that the doctor would tell us we have a big girl on our hands. Avery has cheeks you can't resist, chubby little legs and is already wearing clothes Ella wore at 18 months (I should note they are 6 mo. clothes). She is growing perfect and on a nice curve, but still petite. She is 14.8 lbs and 25.5 inches tall.

Now that Avery is starting to sit up and loves to play, Ella has taken a greater interest in her sister. She is the only one who can consistently get Avery to crack up with a deep belly laugh. There are some afternoons that the two of them can not stop laughing. It is the BEST thing to hear.

My sister Erin and me.
They are both too young to understand it, but I tell them every day how luck they are to have a sister. I am the oldest of two girls. My sister is my best friend. I talk to her every day (usually multiple times a day). She is my confidant, sometimes my boss, my harshest critic and my biggest supporter. She holds a master's degree (2 actually) in education and special ed and has been a tremendous help in navigating the waters when it comes to getting the best services possible for Ella. She is really good at being the person to calm me down when I am upset/sad/mad/frustrated. She even reminds me often (all the time actually) that she was the one to encourage me to write about our life and raising Ella and now Avery. I am so grateful I took her advice. The support I have had since I started blogging has been tremendous.
Ella and Avery watching morning
Tinkerbell. Aves looks skeptical!

I hope that Ella and Avery can have this kind of relationship. I often wonder how Ella's diagnosis will effect Avery's life. We have no idea what the future will hold. We don't know what kind of support Ella will need throughout school. All we can do is live in the moment and continue to be so grateful that Ella is doing very well. What I DO know and I can help mold is how both girls treat others. I like to believe that having a sister that has to deal with challenges many other kids are not faced with will make Avery a more compassionate person. In turn, I have already seen how Avery motivates Ella. She wants to help out all the time. She loves to help feed Avery and she thinks its hysterical to copy her whether it's making raspberry noises or rolling around. When the stroller comes out, my little assistant is right there to push her sister along!

 I hope that they can help each other throughout life -- the good and the bad, and be as good of friends as Erin and me.

   "For there is no friend like a sister, in calm or stormy weather, to cheer one on the tedious way, to etch one it one goes astray, to life one if one totters down, to strengthen whilst one stands." - Christina Rossetti
 

Thursday, February 16, 2012

Time Flies

It is so hard to believe that Ella is almost finished with her early intervention services. She has been receiving services since she was just three months old. This week, we had what is likely the final team meeting. She transitions to the preschool program August 31st...and really that process has already begun.

Our meeting was really good. I would say probably one of the best we've had in terms of progress for Ella. She made huge gains in her motor skills. At our last meeting in August, Ella had literally just started walking. Today she is walking, jumping, and climbing. Jen and Linda have worked so hard, pushing Ella to reach her potential (even under great protest at times!) She reached all of the goals we set for her six months ago. This is the first time in nearly three years that she was able to check everything off the list as accomplishments. Her speech is coming along as well. This is where we are still seeing the greatest delay, but she is slowly making gains and we are confident she'll continue to improve. Michelle is constantly looking for new ways to help Ella communicate and her hard work is paying off. We have been using sign language for quite some time and now we are adding a picture system to our day as well to help Ella pick up more speech. She is a very visual learner and although we have just implemented the pictures, she is already showing us how much it will help her. Ella is also doing great in Toddler group and loving the routine that school gives her. She is a star student!
Getting ready for the pool!

Next up is the move to preschool where she will likely continue to have services. The biggest difference is that her physical therapy, special education and speech services will happen at school rather than in our home. We have a meeting soon with the school district to discuss how often she will have each service and how it all works out. The goal is to have Ella in a position physically, socially and academically to start Kindergarten in a few years at the same level as her peers.

This is a bittersweet time for us. We have some of the best therapists who have devoted so much time to Ella's development and success. They have calmed Jason and me down in times of insecurity and taught us to be better parents and really better people. It will be sad to not see them every week and be able to share every new accomplishment Ella makes. I can honestly say that our precocious two and a half year old would NOT be where she is today without the support of Jen, Linda, Michelle, Jess and Jamie.

I remember that first phone call in August of 2009 from Jamie, our service coordinator, telling us that Ella qualified for an EI evaluation. It was hard to hear, but thankfully I was aware of how beneficial this could be(thanks to Kristin who does this for a living!) and was able to keep an open mind and follow through with service. It is so easy as a parent to be in denial....to think your child doesn't need these services. At times it has been a tough pill to swallow, but the positive aspects of EI are amazing. We started off slowly...with just one visit a week. Now we have a packed schedule that at times seems crazy and exhausting, but I would never trade it. The benefits far out weigh any day that I am tired or frustrated with the lack of extra hours in the day. I will continue to advocate for these services for all babies who qualify. It's a true testament to how a little extra can go a long way!